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Patients et leurs proches
PASSÉ
ÉVÉNEMENTS
June 20, 2023
CARDS Educational Webinar in Collaboration with Soft Bones Canada
Keynote Address:
Dr. Natalie Truba, Psychologist and Clinical Assistant Professor, Ohio State University, Nationwide Children's Hospital
“Hypophosphatasia: The Psychological Effects of Living with a Rare Bone Disease on Patients & Families”
January 31, 2023
CARDS Educational Webinar in Collaboration with Rare Bone Disease Groups Across Canada
Keynote Address:
Dr. Durhane Wong-Rieger, President & CEO, Canadian Organization of Rare Disorders
“Rare Bone Diseases in Canada: The Adult Perspective”
November 29, 2022
CARDS Educational Webinar in Collaboration with the Canadian XLH Network
Keynote Address:
Dr. Jean-Philippe Vaccani, Children's Hospital of Eastern Ontario
“Hearing and XLH”
May 31, 2022
CARDS Educational Webinar, a Partnership between The Canadian OI Society and the Canadian Alliance for Rare Disorders
Keynote Address:
Dr. Jean-Marc Retrouvey, DMD, MSc, University of Missouri-Kansas City, USA
“Dentofacial Issues in OI Current Knowledge and Future Directions”
26 mars 2021
Webinaire éducatif CARDS, en collaboration avec Soft Bones Canada
Discours principal: Dre Cheryl Rockman-Greenberg, Université du Manitoba
"Les trois R de l'hypophosphatasie: arcs-en-ciel, réalisme et résilience"
Regardez l'enregistrement de l'événement. Cliquez ici.
March 29, 2022
CARDS Educational Webinar, in Collaboration with the Canadian Osteogenesis Imperfecta Society (COIS)
Keynote Address: Dr. Sherri Katz, University of Ottawa
“OI & Respiratory Health in a Global Pandemic Era”
26 mars 2021
Webinaire éducatif CARDS, en collaboration avec Soft Bones Canada
Discours principal: Dre Cheryl Rockman-Greenberg, Université du Manitoba
"Les trois R de l'hypophosphatasie: arcs-en-ciel, réalisme et résilience"
Regardez l'enregistrement de l'événement. Cliquez ici.
September 14, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward
“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”
July 28, 2021
CARDS Educational Webinar, in Collaboration with Canadian XLH Network
Keynote Address: Dr. Erik Imel and Dr. Leanne Ward
“Starting the Conversation: What Patients and Families Living with X-Linked Hypophosphatemia Need to Know”
March 26, 2021
CARDS Educational Webinar, in Collaboration with Soft Bones Canada
Keynote Address: Dr. Cheryl Rockman-Greenberg, University of Manitoba
“The Three R’s of Hypophosphatasia: Rainbows, Realism, and Resiliency”
Empowering children, adults, and families living with bone diseases.