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mar. 20 juin



The Psychological Effects of Living with a Rare Bone Disease on Patients and Families

Webinar Co-Chairs: Jennifer Paulson (Soft Bones Canada) Dr. Leanne Ward (Canadian Alliance for Rare Disorders and Professor/Research Chair in Pediatric Bone Disorders, University of Ottawa) Dr. Cheryl Greenberg (Distinguished Professor and Clinician Scientist, University of Manitoba)

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Heure et lieu

20 juin 2023, 19 h 00 – 20 h 30 HAE


À propos de l'événement

This is a free webinar for patients and families living with rare muscle and bone disorders.


Registration is required. 


This webinar is brought to you by a partnership between Canadian Patient Advocacy Groups 

and the Canadian Alliance for Rare Disorders of the Skeleton 



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Empowering children, adults, and families living with bone diseases.

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