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mar. 20 juin
|Virtual Event
The Psychological Effects of Living with a Rare Bone Disease on Patients and Families
Followed by a "Connect with the Community" social time (45 minutes)
Tickets are not on sale
See other eventsHeure et lieu
20 juin 2023, 19 h 00 – 20 h 30
Virtual Event
À propos de l'événement
Hypophosphatasia: The psychological effects of living with a rare bone disease on patients and families
Time: Jun 20, 2023 07:00 PM Eastern Time (US and Canada)
Followed by a "Connect with the Community" social time (45 minutes)
Webinar Co-Chairs:
Jennifer Paulson (Soft Bones Canada)
Dr. Leanne Ward (Canadian Alliance for Rare Disorders and Professor/Research Chair in Pediatric Bone Disorders, University of Ottawa)
Dr. Cheryl Greenberg (Distinguished Professor and Clinician Scientist, University of Manitoba)
Renforcer le pouvoir d'action des enfants, des adultes et des familles vivant avec des maladies osseuses
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