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The Psychological Effects of Living with a Rare Bone Disease on Patients and Families

mar. 20 juin

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Virtual Event

Followed by a "Connect with the Community" social time (45 minutes)

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Heure et lieu

20 juin 2023, 19 h 00 – 20 h 30

Virtual Event

À propos de l'événement

Hypophosphatasia: The psychological effects of living with a rare bone disease on patients and families

Time: Jun 20, 2023 07:00 PM Eastern Time (US and Canada)

Followed by a "Connect with the Community" social time (45 minutes)

Webinar Co-Chairs:

Jennifer Paulson (Soft Bones Canada)

Dr. Leanne Ward (Canadian Alliance for Rare Disorders and Professor/Research Chair in Pediatric Bone Disorders, University of Ottawa)

Dr. Cheryl Greenberg (Distinguished Professor and Clinician Scientist, University of Manitoba)

Partager cet événement

Renforcer le pouvoir d'action des enfants, des adultes et des familles vivant avec des maladies osseuses

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