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mar. 20 juin

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Virtual Event

The Psychological Effects of Living with a Rare Bone Disease on Patients and Families

Followed by a "Connect with the Community" social time (45 minutes)

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Heure et lieu

20 juin, 19 h 00 – 20 h 30

Virtual Event

À propos de l'événement

Hypophosphatasia: The psychological effects of living with a rare bone disease on patients and families

Time: Jun 20, 2023 07:00 PM Eastern Time (US and Canada)

Followed by a "Connect with the Community" social time (45 minutes)

Webinar Co-Chairs:

Jennifer Paulson (Soft Bones Canada)

Dr. Leanne Ward (Canadian Alliance for Rare Disorders and Professor/Research Chair in Pediatric Bone Disorders, University of Ottawa)

Dr. Cheryl Greenberg (Distinguished Professor and Clinician Scientist, University of Manitoba)

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Empowering children, adults, and families living with bone diseases.

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