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mar. 31 janv.



Rare Musculoskeletal Diseases in Canada: The Adult Perspective

Keynote Speaker: Dr. Durhane Wong-Rieger President and CEO Canadian Organization for Rare Disorders ---- Followed by an "open mic" session for all attendees. Plus, immediately after the webinar, join us for a virtual "Catch-Up Over Coffee" with the Rare Bone Disease Community.

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Heure et lieu

31 janv. 2023, 19 h 00 – 21 h 00 HNE


À propos de l'événement

This is a free webinar for adults and families living with rare muscle and bone disorders.


Registration is required. 


This webinar is brought to you by a partnership between Canadian Patient Advocacy Groups 

and the Canadian Alliance for Rare Disorders of the Skeleton 



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Renforcer le pouvoir d'action des enfants, des adultes et des familles vivant avec des maladies osseuses

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